Data Management Day
Tuesday, November 21, 2023
8:30am – 12:00pm
In person in the DHCC Lecture Theatre 1020 (main level), Gordon and Leslie Diamond Health Care Centre
Virtually via Streaming
The UBC Faculty of Medicine Digital Solutions Data Management (FoMDS DM) Team is thrilled to invite you to our inaugural FoM DM Day on Tuesday November 21st, 2023 from 08:30-12:00pm. At this exciting hybrid event, you will learn about interesting research taking place on campus supported by the DM Team and have the opportunity to collaborate with colleagues within the Faculty of Medicine research community.
Agenda and speaker details will be shared shortly.
Please register below to attend the event in person or virtually through Zoom. Coffee and light refreshments will be served for those attending in person.
Tuesday, November 21, 2023
08:30 – 08:35 – Introduction
08:35 – 09:05 – Dr. Emily Schaeffer: Local-to-Global-to-Local in Pediatric Orthopaedics: The Power of Collaborative Partnerships
09:05 – 09:35 – Dr. Aline Talhouk, Shan Wang, Rachel Woima: Remote Management of an Endometrial Cancer Prevention Study: Leveraging Technology
09:35 – 10:05 – Dr. Christine Voss: How REDCap and Fitbits facilitate remote data collection in a physical activity study for children and youth with type 1 diabetes
10:05 – 10:35 – Adam Velenosi: Catalyzing Advancements in Spinal Cord Injury Research: ISCIB’s Data Management Approach
10:35 – 10:50 – Break
10:50 – 11:20 – Liana Leung, Rohit Murali: Overcoming Data Challenges Using Cloud Innovations
11:20 – 12:00 – Kenny, Gurm – DM Team
DHCC Lecture Theatre 1020 (main level)
Gordon and Leslie Diamond Health Care Centre, 2775 Laurel St, Vancouver, BC V5Z 1M9
Tickets are free of charge
- Dr. Emily Schaeffer, Research Director, Department of Orthopaedic Surgery, British Columbia Children’s Hospital
- Dr. Aline Talhouk, Assistant Professor, Obstetrics & Gynecology, UBC Faculty of Medicine; Shan Wang, MSc, Data Coordinator and Analyst, OVCARE, Department of Obstetrics and Gynecology; Rachel Woima, MSc student, Women+ and Children’s Health Sciences program
- Dr. Christine Voss, Assistant Professor, Department of Pediatrics, UBC Faculty of Medicine
- Adam Velenosi, Program Manager, International Spinal Cord Injury Biobank, Praxis Institute
- Liana Leung, Program Manager, UBC Cloud Innovation Centre; Rohit Murali, PhD Student at the Department of Computer Science, UBC CIC Student Researcher
There will also be a short presentation by the Data Management team about our platforms and what is coming in the future.
Data Management Team, Digital Solutions, UBC Faculty of Medicine
Tickets and registration: In-person and Hybrid registration can be completed using our online registration form.
Speaker Information and Presentation Details
Dr. Emily Schaeffer, PhD Research Director, Department of Orthopaedic Surgery, British Columbia Children’s Hospital
Dr. Schaeffer is the Research Director for the Orthopaedic Surgery Department at BC Children’s Hospital, and a Research Associate in the Department of Orthopaedics at UBC. Together with Dr. Kishore Mulpuri, she has developed and expanded their pediatric hip research program – the Hippy Lab. Much of her work has focused on the creation and expansion of the Hippy Global Registry Program, especially the Global Hip Dysplasia Registry (GHDR), the SCFE Longitudinal International Prospective (SLIP) Registry. All of the Hippy Lab’s work is grounded on the principle of Local to Global to Local, promoting equitable, diverse and inclusive research, education and clinical care in a globally-relevant population.
Dr. Schaeffer will be presenting an overview of the local-to-global-back to local approach to building the Hippy Global Registry Program, and the power of a collaborative partnership with the data management team to forge new ground in clinical outcomes research in pediatric hip and other musculoskeletal conditions.
Dr. Aline Talhouk, PhD Assistant Professor, Department of Obstetrics and Gynecology
Dr. Talhouk is an assistant professor in the department of Obstetrics & principal investigator at OVCARE, BC’s ovarian and gynecological cancer research program. Her research seeks to develop approaches for disease prevention, early detection, and personalized healthcare through patient-centered care and collaborative research. Leveraging self-tracking, self-monitoring, and digital health, Dr. Talhouk work strives to develop accurate and fair prediction models and design clinical studies to improve health outcomes through precision medicine, all while ensuring patient privacy, autonomy, and the ability for self-determination.
Shan Wang, MSc, Data Coordinator and Analyst, OVCARE, Department of Obstetrics and Gynecology
Shan is a Data Coordinator and Analyst on the Informatics Team at OVCARE. He is dedicated to constructing integrated pipelines that span initial data acquisition to comprehensive data management, within a unified data platforms. He is deeply involved in the critical projects of data quality assurance, data curation, and the strategic migration of datasets, to maximize data coherence and research analysis value.
Rachel Woima, MSc student, Women+ and Children’s Health Sciences program
Rachel is a MSc student supervised by Dr. Aline Talhouk. Rachel’s thesis work is focused on screening for early detection and prevention of endometrial cancer. Her work in the Talhouk Uterine Health Research Lab involves coordination of participants through a multi-phased clinical trial assessing the feasibility of a proposed screening protocol for endometrial cancer.
Remote Management of an Endometrial Cancer Prevention Study: Leveraging Technology – We will share our experience using the REDcap, MyCap, and OpenSpecimen platforms to remotely manage an acceptability and feasibility study for the prevention of endometrial cancer. We will describe our use case, setup, and the various technologies employed throughout the study. Additionally, we offer insights into a few challenges we encountered.
Dr. Christine Voss, Assistant Professor, Department of Pediatrics, UBC Faculty of Medicine
Dr. Voss is an Assistant Professor with the Department of Pediatrics, based at the UBC Centre for Chronic Disease Prevention and Management in Kelowna. She partners with the Interior Health Authority on projects relating to pediatric health in the BC Interior. She is also an investigator with the BC Children’s Hospital Research Institute, where she collaborates closely with the Pediatric Cardiology team. Her research examines how physical activity behaviours relate to current and long-term health outcomes in children, and identifies strategies to improve physical activity participation in children. Her research frequently utilizes state-of-the-art technologies to understand complex physical activity behaviours, particularly in at-risk pediatric populations in whom such insight might inform clinical care.
Dr. Voss will be presenting on the utility of REDCap to facilitate all aspects of remote data collection in a research project involving children and youth with type 1 diabetes from across the BC Interior, ranging from electronic parental consent to study questionnaires to extracting detailed intra-day (minute by minute) Fitbit data via custom-written API to monitor physical activity levels and sleep over time in our study population.
Adam Velenosi, Program Manager, International Spinal Cord Injury Biobank, UBC ICORD
Adam Velenosi is a biobanker with over nine years’ experience in the field of biobanking at UBC. He is the Program Manager of the International Spinal Cord Injury Biobank (ISCIB; www.sci-biobank.org) located at UBC’s International Collaboration on Repair Discoveries (ICORD) and established by surgeon-scientist Dr. Brian Kwon. ISCIB is a repository for human spinal cord injury specimens, imaging and associated data that are made available to the global spinal cord injury (SCI) research community with the mission of accelerating therapeutic development in SCI.
Adam will be presenting on ISCIB’s utilization of the OpenSpecimen platform, a biospecimen management system offered by FoM Digital Solutions, across multiple studies and international clinical trials affiliated with ISCIB and Dr. Brian Kwon.
Liana Leung, Program Manager, UBC Cloud Innovation Centre
Liana Leung is Senior Project Manager in the Office of the CIO and Program Manager of the Community Health and Wellbeing Cloud Innovation Centre (CIC) at UBC. As Program Manager, Liana is responsible for managing CIC challenge projects, providing leadership to the CIC program, and hiring and mentoring the student staff that learn and work with the core team.
Rohit Murali, PhD Student at the Department of Computer Science, UBC CIC Student Researcher
Rohit Murali is a PhD Student at the Department of Computer Science at University of British Columbia. Rohit has been a student researcher at the UBC CIC for over 2 years with an expertise in artificial intelligence and machine learning projects. Rohit has led the development of various projects that make use of AWS’ cloud services to tackle real-world problems to make a positive impact and improve health and wellbeing in our community.
The UBC CIC takes challenges from not-for-profit, community and public sector organizations, and then through work-integrated learning, student teams create working technical prototypes to address those challenges. Over the last few years, the CIC has worked on a large number of health sector related challenges. Liana and Rohit will present on some of the recent projects completed.
Please contact us with any questions at email@example.com.
FoMDS DM Team