Purpose
The International Hip Dysplasia Registry (IHDR) project is led by the HIPpy Lab at BC Children’s Hospital, with Dr. Kishore Mulpuri and Dr. Emily Shaeffer as lead investigators. The HIPpy team leads and coordinates several prospective international research registries in pediatric orthopaedics. The size and scope of these registries involves upwards of 25 centres across eight countries and five continents, with thousands of patients enrolled worldwide. IHDR is an international pediatric research registry that follows children with developmental dysplasia of the hip (DDH), a malformation of the hip socket causing hip dislocation, for their first 10 years of life. The goals of this registry are to develop a better understanding of DDH, including risk factors, screening, or surveillance of the hip, and different treatment approaches such as bracing and surgery.
Our Involvement
IHDR is hosted on REDCap, and our team has helped develop, build, implement and evolve this registry as it grows. Our team is also working to integrate the registry with AMBRA, an image management software, and to create customized reports and data visualization dashboards using Power BI.
Services Used
Electronic Data Collection
Data Visualization
“The FoM Digital Solutions Research Technology team has long been a critical support and partner for the HIPpy Lab on a number of our complex projects involving global collaborations. They have been tireless in providing us professional and efficient support from their wealth of expertise, and have been true partners in the success of our global projects. They consistently go above and beyond a standard support role, always willing to brainstorm and problem solve with HIPpy team members, finding creative solutions to novel challenges as we break new ground in the pediatric orthopaedic world. The HIPpy Lab is extremely grateful for our partnership with the Digital Solutions Research Technology team, and are looking forward to continuing this collaborative relationship as we progress.”
-Dr. Kishore Mulpuri, Professor & Head, UBC, Department of Orthopaedics, and Pediatric Orthopaedic Surgeon & Investigator, BC Children’s Hospital